June is Myasthenia Gravis Awareness Month:
Typically, I avoid sharing details about my health
because I never want anyone to think that I am looking for sympathy.I do not feel bad for myself, so I never want
anyone else to feel bad for me.However,
I have decided to share a few details about my ongoing physical battles in the
hopes that my story can inspire someone else.I am constantly reminded that the battles we face are NOT about us.So, I never ask myself why me?Instead, I constantly wonder, why NOT me?
I started college in August 1994.Like most undergrads, I was looking forward
to being independent and to enjoying all that campus life had to offer.But instead of soaking up the fun of campus
life, my first year of college turned into what would be one of the most
challenging years of my life.During the
first week of Freshman Orientation, I fell down a flight of stairs
backwards.As someone helped me to my
feet, I kept thinking about my clumsiness.I wish that the story ended here.As I would learn years later, being clumsy was the least of my worries.Throughout my first year of college, I
continued to fall, continued to struggle up and down stairs, and continued to
have issues chewing and swallowing.I
was suffering from what I later learned was muscle weakness, and in 1995, I was
diagnosed with a rare neuromuscular disease called Myasthenia Gravis.Those two fancy words simply mean “muscle
weakness.”I have always been a positive
person.Rather than wallowing in
self-pity, I made a decision to listen to my amazing Mom who always reminded me that I could “be better or I could be bitter.”I also made a decision to keep going and to
continue pursuing my goals.I had (and
still have) SO much to do during my time here.
Some days are better than others physically. Some days I move around without any mobility
issues while there are some days that I struggle to do ostensibly simple tasks
(buttoning my own pants/shirts, opening a container, walking without taking
frequent breaks, getting out of a chair without help). In the face of adversity, I am SO grateful
that I have an amazing support system, that I have amazing health insurance
plans, and that I have been blessed to see my dreams come to fruition. I graduated from college with honors. I earned a Ph.D. And, I get to do what I LOVE. God has consistently surrounded me with
loving friends and family. Before I was
officially diagnosed with MG, my college roommates literally carried me on
their backs to and from class. My
amazing husband takes GREAT care of me.
He has helped me get dressed, climbed under public bathroom stalls to
help me up, and carried me on his back more times than I can count. And, my friends are always there to offer a
steady arm or an encouraging word to keep going.
Despite all of this, I am SO grateful that I serve a
healing God. And, I am SO grateful that
I have been blessed with an amazing life.
I encourage you to keep pushing no matter what obstacles you face. I cannot count the number of times I’ve received funny looks if my husband helps me out of a chair while we’re in public. So, I encourage you to not stare when someone who seems fine is struggling physically. And, most of all, I encourage you to ALWAYS be kind.
Thanks for stopping by!